tag:blogger.com,1999:blog-17773413.post9219280557081578146..comments2023-10-11T06:53:04.152-07:00Comments on Parenting A Complex Special Needs Child: Maybe a Better Question re the Pillow AngelPeggy Lou Morganhttp://www.blogger.com/profile/13218318064439656924noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-17773413.post-21028084725491108862007-06-18T14:24:00.000-07:002007-06-18T14:24:00.000-07:00I always feel that people(ALL people, those with s...I always feel that people(ALL people, those with special needs children too) are too quick to judge others on what they themselves would or wouldn't do. But we don't live Ashley's family's life and cannot imagine what a heartbreaking decision this must have been for them. There is a wonderful and profound native indian saying - 'Don't judge a man until you've walked in his moccasins' How true is that!<BR/>The family will need support and love from others not condemnation. Maybe we all need to learn to love and not judge.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-43111143550622116962007-05-08T22:05:00.000-07:002007-05-08T22:05:00.000-07:00Let's just focus on one simple fact: no one loves ...Let's just focus on one simple fact: no one loves Ashley more than her parents. All the hypocrites who think they can do better -- shut up, and go help others. Yep, it's always easier to criticize others! I'm a physician, and people admit to me all the time that they don't want to be in medical field because they don't want the responsibility. I always admire parents who take on the responsibility to care for their children with special needs. Regarding the potential for abuse, PLEASE, judges abuse their power everyday. I can't believe that people are still so naive to think that court order makes an action ethical. Court merely legalizes; we, as parents, shoulder the burden of ethics. Do you think that if a judge were to make a ruling, he/she would say, "you didn't act in Ashley's best interest, so I'm going to take better care of her" afterwards? Ten years later, you WILL see Ashley's parents continue to love her even after the world minimizes their love today... when we should have supported and admired them for giving so much love.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-21984322442502854702007-04-22T02:30:00.000-07:002007-04-22T02:30:00.000-07:00All I know, is that if it was us, we would never h...All I know, is that if it was us, we would never have done this. There is always hope, and they have just removed that for their child. No hope of being an adult?<BR/>Child autism is on the increase, we spend all our days living it, and we as parents will move heaven and earth to help our son, no matter what it costs.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-53628321581181702412007-01-27T21:28:00.000-08:002007-01-27T21:28:00.000-08:00That's a really good question. I do not think pare...That's a really good question. I do not think parents are supported because the support (in my view) begins with tolerance and acceptance. Then, access and accomodation would be second nature. Stigma might be a thing of the past. <br /><br />However, someone did mention in an argument I read over the past weeks, that in light of better and better technology and equipment to assist people like Ashley, that stunting her growth was unnecessary.<br /><br />I have four friends with kids with CP and other disabilities. I have seen the equipment, facilities, beds, and tech. equipment that they can use. In discussing the treatment with the parents, this was not a viable option.Estee Klar-Wolfondhttps://www.blogger.com/profile/04075904929829751057noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-55333538931590738962007-01-21T06:19:00.000-08:002007-01-21T06:19:00.000-08:00I just left a link to an article and the parent's ...I just left a link to an article and the parent's blog on my daughter Ivey's blog. More than likely we, as parents, will be raising a profound complex child, this article really hit a nerve. The choices that parents are forced to make can be profound and unyielding in the eyes of an outsider. Knowing how difficult it is to move my 10pound 9 month old around with all of her equipment, I can see both sides of the saga. I will say that Ashley's parents are very brave. Of all the path's that I can envision in my daughter's future, this was not even a flicker, until now. What if it is hard to move my daughter as she ages, how will we as a family keep her with us? She is blind and mentally disabled, where will that leave her in her future?Ivey's Momhttps://www.blogger.com/profile/09193400877174754085noreply@blogger.com