tag:blogger.com,1999:blog-17773413.comments2023-10-11T06:53:04.152-07:00Parenting A Complex Special Needs ChildPeggy Lou Morganhttp://www.blogger.com/profile/13218318064439656924noreply@blogger.comBlogger356125tag:blogger.com,1999:blog-17773413.post-26783338227289324532013-02-22T10:18:00.572-08:002013-02-22T10:18:00.572-08:00Wanted to post this link to an article featured th...Wanted to post this link to an article featured this month for parents of disabled children. Very helpful from a practical and spiritual standpoint. We all need encouragement.<br /><br />http://www.jw.org/en/publications/magazines/wp20130201/disabled-child/<br />Reply Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-41370506037292380032012-06-30T17:46:30.849-07:002012-06-30T17:46:30.849-07:00hi, i was tols my son was autistic at age 5. Now h...hi, i was tols my son was autistic at age 5. Now hes 7, and showing signs of bi polar.. He aiways had aggressive behavior, but now i found myself restraining him at least once a day, from the biting, kicking head bunting. He is beck on reperadone,was on abilify did not help his aggression but once he got off it his behavior exploded. He also tells me he wants to kill me and seems to change into another person, says hes not himself and turns violent= dont know what that means but its really scarey.. Hopefully he will mellow down soon.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-92023230033114587342012-06-20T09:47:56.020-07:002012-06-20T09:47:56.020-07:00I forgot to tell you that we had issues with Ashle...I forgot to tell you that we had issues with Ashleigh at her schools. We got her a child advocate. It was the best thing we did! No more issues. The child advocates sits there. Asks a few questions. We get what we want. =)Always Readinghttps://www.blogger.com/profile/09575864273311735978noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-52844773948641725732012-06-20T09:38:36.641-07:002012-06-20T09:38:36.641-07:00Just found your book, Parenting Your Complex Child...Just found your book, Parenting Your Complex Child, on a library site. I am reading it now. My daughter, Ashleigh, is 12 & has Spastic Paraparesis, which is a neurological disease. She is learning she is different from kids her age & her brother, Noah. Her behavior has been bad. Bad is not the word to describe it. Her attitude towards me is awful. I do have 3 therapists in our home. We have had some changes so her behavior has gotten worse. Ash hates changes.Always Readinghttps://www.blogger.com/profile/09575864273311735978noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-70550105550942645432011-12-31T20:53:44.247-08:002011-12-31T20:53:44.247-08:00Rhoda...I am with you! Plates are all full and Ta...Rhoda...I am with you! Plates are all full and Tanya D. is a piece of work... not the kind of "professional" that I would wish on my worst enemy!! My Aspie has so many co-morbities that I have lost count. To make matters even more interesting I m paralyzed. Not asking for pity, just pointing out the fullness of the plate. It is a moment by moment kind of battle for these kids but one well worth the fight. Blessings to all of you (yeah, you too Tanya D.).Kellyhttp://www.neurodiverse.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-12246555505787946332011-12-26T06:19:46.302-08:002011-12-26T06:19:46.302-08:00You may be interested in this video:
http://www.y...You may be interested in this video:<br /><br />http://www.youtube.com/watch?v=qn70gPukdtY<br /><br />It's by an autistic self-advocate who often gets called retarded, and your response to that word kind of reminds me of hers.Ettinahttps://www.blogger.com/profile/08230821659466586897noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-17736412486916706032011-12-11T05:00:34.739-08:002011-12-11T05:00:34.739-08:00My daughter (11) was diagnosed with bipolar at 9. ...My daughter (11) was diagnosed with bipolar at 9. We didn't medicate until she was 10. After a year on meds, and the bipolar was stable we switched pdocs. We weren't happy with the level of communication we were getting. We took her to another pdoc who asked some questions and said that he felt we were also dealing with the autism spectrum/pdd-nos or asperger's. While I hate having my child on meds, I can't go back to life without the intervention. Her meltdowns are way more mild. The violence is under control. I can clearly see the mania. Currently, she is heading into a manic state and will most likely have her meds increased. Godspeed to all of you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-23422457073458171302011-12-06T20:21:27.821-08:002011-12-06T20:21:27.821-08:00Hi Peggy. My name is Steve and I am a caregiver f...Hi Peggy. My name is Steve and I am a caregiver for a couple of special needs adults. Our guys share a house together. We have a staff of caregivers who support Mike and Brad on a 24 hour basis. <br /><br />Your story about the walkman and the batteries has a similiarity to an issue we are having a hard time with. Brad is developmentally disabled with CP with mild retardation. On top of it all he is epileptic due to a bout with meningitus at three months old, which caused severe damage to one side of his brain.<br /><br />It is due to the brain damage that Brad is non-verbal and not able to tell us what is ailing him. Suffice it to say, Brad has seen numerous professionals and been in the hospital quite a few times in the past few months. He is having some kind of stomach ailment which the doctors haven't been able to diagnose.<br /><br />He has been taking a regimen of medications to include anti-convulsives. The problem we are having on top of it all is that Brad is being very combative when we give him medications and during meal times. His refusal has forced us to retrict his movements in order for us to do what is best for him with relation to administering meds and getting him to eat. <br /><br />I am telling this to you in hopes you might have some insight as to why he is being so combative and what we might be able to do about it all. The last thing we want is to force Brad to do anything, but at the same time we can't just let him wither away . THAT would be even worse in our opinion.Unknownhttps://www.blogger.com/profile/12234138266484533711noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-23594370203451567902011-10-29T10:05:27.096-07:002011-10-29T10:05:27.096-07:00I have and adult (42 years old) son with severe au...I have and adult (42 years old) son with severe autism and I get very frustrated that when I google anything concerning adults with autism, I get results dealing with autistic children, not adults.....and adults with autism differ from children with autism as much as "normal" adults differ from "normal" children. What works with children doesn't work with adults.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-66852629929691028652011-08-08T08:16:14.703-07:002011-08-08T08:16:14.703-07:00What therapies would you suggest for a 4 1/2 year ...What therapies would you suggest for a 4 1/2 year old who doesn't sleep well, who is profoundly deaf and has several delays - mental, physical, physiological.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-89361104274836019092011-07-22T17:25:00.612-07:002011-07-22T17:25:00.612-07:00I have a child with autism and epilepsy and am int...I have a child with autism and epilepsy and am interested in a service dog but unsure of what to do to get one, any suggestions?? caspermom_99543@yahoo.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-59048525103857578002011-05-19T17:28:44.777-07:002011-05-19T17:28:44.777-07:00My son is an adult with low-functioning autism.In ...My son is an adult with low-functioning autism.In the last few years he has been diagnosed with bi-polar syndrome as well. He exhibits the same tendencies as many of the chldren mentioned by other parents: hysterical laughter, violent,wild-eyed rage, aggressiveness towards others, self-injurious behaviours etc. We have tried a plethora of medications. None of them work well for long. Behavioural re-conditioning has no effect. Our lives together are a nightmare at times.Best&WorstofTimesnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-34535996916988981192011-05-19T10:03:59.374-07:002011-05-19T10:03:59.374-07:00It is hard to parent a special child and with odd ...It is hard to parent a special child and with odd and difficult situations in life it gets harder...but try as we must surpass the health needs of a child.EMRhttp://www.healthtec-software.com/emr.htmnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-5456585167783482832011-04-12T20:05:15.278-07:002011-04-12T20:05:15.278-07:00I am the mother of a 24 year old that is bipolar, ...I am the mother of a 24 year old that is bipolar, adhd, aspergers, ptsd, and has cerebral palsy. I began to have problems with Eric very early in his life. About the age of 2 I would say, by 3 we were seeking therapy for his outrages. He is now of meds or has been for quite a while. It is a lonely world when you think you are the only one. But having children with multiple mental disorders kind of makes you that way. You want to help your child or in my case my adult son, but it feels like you are pulling your hair.<br />Anyone like to talk, vent swap stories email me at janethood1@gmail.comJanethttps://www.blogger.com/profile/01146271684110538972noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-28988260208616403952011-04-11T10:23:30.105-07:002011-04-11T10:23:30.105-07:00I came across this situation where the "R&quo...I came across this situation where the "R" word was used 4 times amongst three women during a fundraising event I was working with them.<br /><br />I know they were not aware of what they were saying or how it was starting to bother me as I have a developmentally disabled child. They were referring to the work that they were doing was "retarded" and "this is retarded." <br /><br />I was needless to say very upset, but I didn't say anything just for the shear fact that I knew that no matter what I said to these ladies they wouldn't care, because it didn't effect them personally so why would it matter to them.<br /><br />I know that was not the best way to handle this situation by being quiet, but it was honestly the first time in 5 years I have been subjected to this ignorant behavior, and honestly I wasn't quite sure how to handle it.<br /><br />Now in discussions with others I realized I should have politely asked them to use another word, that I didn't feel that word was appropriate and I know this now, but I was surprised at the number of times they used it within the 3 hours I was with them.<br /><br />It's just really ashame that people use this word so freely.Marla Muraskohttp://specialmompreneurs.comnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-64153531740643556472011-03-03T17:06:06.244-08:002011-03-03T17:06:06.244-08:00So many comments i cant figure out where to begin!...So many comments i cant figure out where to begin! TanyaD .. i can't even begin to touch your post. However, others seem to have already said what I think so I will just move on. <br />My son is 16. We're going through so much right now. Diagnosed PDD-NOS with a secondary of Autism. A couple of years ago our former neurologist diagnosed him with Intermittent Explosive disorder.. But after the events that have occurred lately, I am thinking BiPolar is more appropriate. Either way, his meds would cover that diagnosis as well. Wow. We have some full plates people!Rhondahttps://www.blogger.com/profile/12925172975712121231noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-3799524461454379572011-01-29T10:41:24.271-08:002011-01-29T10:41:24.271-08:00As parents of special needs kids, one of our prima...As parents of special needs kids, one of our primary roles is to educate our communities where ever we go. Thanks for the nice article. Best to your and your family.Anonymoushttps://www.blogger.com/profile/01352612369435451905noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-35596787740958844142011-01-21T11:25:17.788-08:002011-01-21T11:25:17.788-08:00We live in a strange time that seems to only get s...We live in a strange time that seems to only get stranger. Sometimes ignorance pokes its ugly head during these times.HOPELightshttp://www.hopelightmedia.comnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-69641607116464523252011-01-14T20:11:37.172-08:002011-01-14T20:11:37.172-08:00I wrote about the R word too. I like how you handl...I wrote about the R word too. I like how you handled this situation - direct but without an angry blow-up.<br /><br />Here's the post I wrote:<br />http://www.especiallyben.com/2010/11/r-word.htmlVMIhttps://www.blogger.com/profile/05077362824370880824noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-48450411073453118132011-01-04T07:39:51.934-08:002011-01-04T07:39:51.934-08:00I also have a child with an intellectual developme...I also have a child with an intellectual developmental disability, referred to in the past as mental retardation. I don't mind the word mental retardation as a medical term to explain my child's disability. I don't mind the medical term obese to describe her weight problem. But these are medical terms, best used in medical discussions. <br /><br />Words usage evolves over time and each generation has had its words for intellectual developmental disabilities. Idiot, moron and imbecile are examples of past terms used to identify this condition. Retardation is now joining the ranks of obsolete terms because it no longer describes a medical condition, but more often a verbal "put down".<br />Where will it stop? Will we need to continually change terms? Or is the bigger problem that we classify people at all, separate them, and label them? I don't mind saying my daughter has Down syndrome (again a medical term), but I cringe when someone says she is a "Downs kid"--as if she's not quite human.<br /><br />I like the vision of universal learning and universal design. Humanity is rich and varied. People are just people and inside we're the same.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-56442332592305942782011-01-03T08:40:21.470-08:002011-01-03T08:40:21.470-08:00Tanya D
As a Board Certified Behavior Analyst, a m...Tanya D<br />As a Board Certified Behavior Analyst, a mom of two boys with autism, with co-morbid conditions, and a woman who suffers from depression and anxiety, I respectfully disagree with some of your comments. While a child with autism may have a difficult time interpreting the emotions of others and responding to social situations, if there are times when there are no clear antecedents to sobbing and anxiety,i.e., the alone condition, we cannot assume that there is not another diagnosis, i.e. depression, anxiety, bipolar, to investigate. Cognitive therapy does not work well for our kids, who do not have a basic understanding of all of the language utilized in this form of therapy, i.e. the communication factor, and may not be able to describe abstracts or internal feelings. Just because the literature has not proven, or caught up with the fact that, some of our kids may have dual diagnoses, does not mean they are not real. Every child is different and there is not much available yet empirically on this topic. I would defer to a neurodevelopmental pediatrician or a psychiatrist who specializes in diagnosing mood disorders in children with autism<br />Respectfully<br />Laurie BCBA momLaurienoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-91444640921281723472010-12-20T13:38:27.243-08:002010-12-20T13:38:27.243-08:00I think this is what we are going through. our son...I think this is what we are going through. our sons psychiatrist said he may be bipolar as well.He also throws water and things down our stairwell and laughs and climbs on things.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17773413.post-35817844404858688032010-12-17T06:59:15.466-08:002010-12-17T06:59:15.466-08:00It is nice to see you blog again I have missed see...It is nice to see you blog again I have missed seeing your posts. I admire the manner in which you approached this young girl and her mother, it was necessary to do. It is a shame how often the R word is used these days so carelessly.Lorahttps://www.blogger.com/profile/16566410028761708698noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-49909192409578342142010-12-13T16:41:28.313-08:002010-12-13T16:41:28.313-08:00Follow me if you like, I love your blog !! Our Ang...Follow me if you like, I love your blog !! Our Angel, Adams...Ericahttps://www.blogger.com/profile/14576663291324105564noreply@blogger.comtag:blogger.com,1999:blog-17773413.post-70995097314403299132010-12-02T23:42:05.030-08:002010-12-02T23:42:05.030-08:00My son has aspergers and mood disorder NOS. Along ...My son has aspergers and mood disorder NOS. Along with ADHD, ODD, OCD, explosive disoder, behavior dis, sleep disorder NOS, anxiety disorder NOS, and sensory integration dis. He takes meds that help but are by no means a fix all. He sees a behavior and developmental specialist as well as a child psychiatrist. He is manic most the time, very defiant and aggressive. He has come along way however....after 2 dozen daycares and 5 schools later. LOL. He is very bright....has a photographic memory and recalls the smallest details. He is amazing and we take the good with the bad...Anonymousnoreply@blogger.com